Diane MacLean's Story
my son daughter has club feetAt first it was a real shock to us but we were immediatley directed to Yorkhill Hospital where his treatment started when he was 3days old. Both his feet were casted using the Ponstetti Method (which I would recommed to anyone who has a child born with Club Feet). This casting was done every week untill he was 3mths, he then had a minor procedure to release the achilles tendons at the back of his heels. He kept the casts on for 3 full weeks then we used the Denis Brown Bar. The bar was kept on 24hrs a day only removing when bathing him or changing his clothes for a period of 3mths. He continued wearing the bar only when he was sleeping untill the age of 4 which he turned about 3 weeks ago. Cameron is just a typicall robust 4yr old who you would never know had club feet. We just count our blessings that this was all that was wrong with our son when you see the very sick children who attend Yorkhill Hospital. Just keep positive throughout & never give up.
Added on 15 Mar 2007
Comments
All times are in GMT -04:00Comment added by Diane In Response To Alison on the Sat 1 September 2007 a 05:44pm
Sorry Alison I do not know of anyone who is having the treatment your daughter is having but I'm sure everything will work out well. The best person to ask is your consultant. Good Luck.
Comment added by Diane In Response To Scellina on the Sat 1 September 2007 a 05:41pm
You wear the boots 24hrs for 3 months, then they wear them only when they are sleeping up to the age of 4yrs. Perservence is the only key. I know sometimes it seems very hard & impossible but it does become easier as it just becomes part of your bedtime routine. I can tell you its worth it. Our son Cameron is now 4 1-5yrs old and attending school & we are so proud of him when we see him running about like any other child. Stick in there
Comment added by Sclenna on the Tue 28 August 2007 a 08:42pm
My 3 mo old son was born with a club foot (right) and was plaster casted from the age of 3 wks. He wore a cast for 6 wks and also had his heel clipped. He is now in the Denis Brown shoes and it's been 2 wks and i'm having a hard time with him getting used to them. Is anyone aware of how long the shoes are worn on an all day basis? I know at night it can be up to 4-5 yrs.
Comment added by Alison on the Fri 29 June 2007 a 12:30pm
My daughter is 5 weeks old and was born with bilateral talipes. She has been having manipulations since she was 5 days old. She is being treated at Yorkhill but instead of plaster casts her feet are put on to metal plates which are screwed on to a metal bar - looks kind of similar to the boots and bar method I have seen on the Ponseti websites. Treatment is going really well so far but I was wondering if you knew of anyone else who has had the metal bar instead of the plaster casts ? We will find out soon if she will need the tendon snip and will hopefully not have too much longer to go before she goes in to boots.
Comment added by Lena on the Wed 16 May 2007 a 06:15am
your child just need's to get use to having them on his feet at night i put my son in a baby sleeping bag (grow bag) so he could not get his feet out. it did work now he love having his shoe's on for bed he is 2 and a half now and he make's me put them on every night he will not be without them.
Comment added by Diane In Response To Kirsty on the Mon 14 May 2007 a 03:48pm
Cameron always had a problem with his left foot, it took longer to correct itself but it eventually turned just as well as the right one. He always managed to get his left boot off but fingers crossed everything is ok now. Keep focused.
Comment added by R. Roell on the Mon 14 May 2007 a 01:04pm
My son who is now 8 months old is doing a lot better about keeping his shoes on all night. The one thing that we have done after putting his shoes on is to use an Ace bandages to wrap around the top of his ankles and around the bottom of his feet. This has worked great for us. Hope this helps someelse. His feet are making a great improvement. Thanks to God and many prayers.
Comment added by Kristy Mcinnes on the Sun 13 May 2007 a 07:41am
my son was born w/bilaterial club feet. he also got his tendons cut but the left foot did not pop up like the doctor would have liked. he now has the posetti shoes but only has the right one on .the doctor is having another boot-shoe made i am not sure exactly because the left one kept popping off because his foot was still in a ballerina position. i am hoping this will work.....
Comment added by Diane In Response To Stephanie on the Sun 15 April 2007 a 07:56am
Cameron kept his boot on untill the age of 4. We were going on holiday abroad for the first time so we potty trained Cameron when he was about 2 & we had no problems. Any more questions please email me. Thanks Diane
Comment added by Stephanie on the Thu 12 April 2007 a 04:05pm
hi, my son was too born with talipies, he has just turned 3 and wears them now only for bedtime. he too had his acilies tendan cut so his heel would drop. do you know how long your son will have to wear the boots on the bar for at bedtime? have you managed to potty train your son at night time with earing these boots? thanks
Comment added by Stephanie on the Thu 12 April 2007 a 04:04pm
hi, my son was too born with talipies, he has just turned 3 and wears them now only for bedtime. he too had his acilies tendan cut so his heel would drop. do you know how long your son will have to wear the boots on the bar for at bedtime? have you managed to potty train your son at night time with earing these boots? thanks
Comment added by Diane Maclean on the Thu 5 April 2007 a 01:43pm
In response to comment by R. Roell do you have an email address. Cameron slept in our room next to our bed so we were always aware of when his boots came off & we just put them back on again. Unfortunately this could happen about 6 times a night. The only thing that did help was Yorkhill putting heel grips on the back of his boots we found this helped. We also bought our own laces which were much longer & we could tie them tighter. Funny enough it was always his left boot that he managed to get off. If you want any more advice or want to ask any more questions dont hesitate to email me. Thanks Diane
Comment added by R. Roell on the Mon 26 March 2007 a 03:25pm
Our son is going through the exact same thing. He is 6 months old and kicks his shoes off quite often. I was wondering if you had any suggestions on keeping his shoes on. We check on him at night before we goto bed and make sure they are on but, in the morning he at least one foot out, if not both. Are there any special socks, or padding we can put into his shoes?
Any advice would be greatly appreciated. Thanks.