Julie Demerly's Story
my son daughter has club feetMy son Seth was born with bilateral clubfeet May 1995.
He was put in casts before he was 24 hours old. They did that for 3 months and then decided that was not working.
So they told me to bring him back after he tried to walk on his feet. Well my husband & I just did not feel that was right, good thing my father-in-law was in the right place at the right time, he ran into a shriner and they told us about a free clinic to take Seth too.
He was sceduled for an appointment to have his first surgery at 7 months old. That went well his feet started to turn in again so he had his 2nd surgery at 9 years old to do a tendon transfer on both feet now that was a trip.
His feet do cause him pain on a daily basis some days worse than others, he's doing ok he's played baseball for 4 years taking this year off due to testing for his black belt in karate in September. That day will definitely be a day for motrin.
He goes back to the Shriner's Hospital in September for another check-up, last time they said he might need another surgery on his left foot which is the worse one of the two.They might have to cut through the bone and move his ankle & heel where it is suppose to be. (under his leg I guess) Has anyone out there ever heard of this before? anyway I'm glad I found out about this site it has been awesome. Thanks
Added on 14 Aug 2006
Comments
All times are in GMT -04:00Comment added by Julie Demerly on the Tue 6 March 2007 a 07:07pm
the shriners do have a web site, you should be able to get all the information you need. Good Luck
Comment added by Ginna Mercer on the Sun 26 November 2006 a 01:50am
i have the same thing i was born january of 1995 and had my surgery in october.Seven months after i was born.i still have my cast from when i was a baby.No i dont wear it but i have played soccer for 5 years now.i had my surgery at shriners in shreveport, la.im walking thank god!but i have check ups too in november.they tell me to do my excersices and i do.it helps a whole lot!well i hope your son doesnt have to have surgery again.best of luck!!!
Comment added by Sue Moore on the Mon 21 August 2006 a 09:28am
My great granddaughter was born with bilateral club feet. She was casted on a weekly basis until she was 9 months old. she had surgery in april of 2006 - Her left foot is still very bad as she is now 1 year old and tries to stand she stands on the top of her foot. It looks as though she will definitely need another surgery- I would like information on the Shriners Hospital