Information on Club Feet in Black and White

Jamie's Story

i have club feet
My name is Jamie and I am now 19, and born with Club Feet.
I have had about 10 operations now, and my feet are still bad.

The main operation I had was Frames, in 1997, when I was 10. This operation, they put pins through the legs, and I turn a screw a quarter turn, 4 times a day. This operation, the pins are on the legs for about 5 months, and then plaster goes on the legs for about 3 months.

The operation was performed by the surgeon that pioneered the frames technique in the UK.

When I had the frames on my legs, I had a slight accident, when walking, where I fell backwards and broke my right leg.

Due to me being stupid, I grinned and bared the pain, as I was due to get the frames removed in a month or so.
Due to the break in the leg, I couldn't turn the screws in my right leg no more.
After the operation was completed and the plaster was removed, we noticed that my left foot was over corrected by the right foot was ok.
This is just to prove that accidents can bring good things.

After that operation, my right foot has not been that bad, it is straight, and doesn't cause me much pain.
I do suffer from a lot of discomfort in my left foot, so I am still having operations, I can live with the pain in my right foot, I can't be on my feet for to long, but the pain is not as bad.

As for my left foot, I am still having operations to correct the problem.
Another operation I have had after the frames was a "re-fusions". This is where the doctor breaks the bone and fuses them back together again with internal pins.

That operation was not very successful, I am still having pain in my left foot, I have had the pins removed.

I have now moved to Spain, and I have seen a doctor over here, who wants to do the same operation as before.

To sum up the story, I am now 19 years old, had numerous operations, still having operations but I have a great job

A driving Licence

And a great life

Watch this space, there will be a page about this operation online, when I have had the operation.

[b]Update 24 January 2006[/b]
Hey all Well I was still waiting for this operation and being in Spain, while speaking little to no Spanish, this would be fun.

I was still waiting for the operation, hearing nothing, so I booked the morning of week, and me and my translator headed for the hospital.

I am booked for the operation on Social Security, but in a Private Hospital, so we went to the hospital to get an idea of how long till I have the operation, I am sure 10 tablets a day is not doing me any good.

Got to the hospital in Central Malaga, and they said that I am not on the records, I need to go to the Main Hospital for that group.

OK, to another hospital in Central Malaga, and they said that they sent me a letter in December, which got returned to them, so they took me of the waiting list, saying that I cancelled.

You with me so far, so of we go to the Clinico, the Main Main Hospital, the Social Security hospital, not private.

What happened was they put the wrong address on the form, so as it was an error with the hospitals, they had a look to see what they can do, (yea, I can't believe it, but not speaking Spanish, I had no idea what they were saying).

As it goes, there are 4 spaces available within a period of a month, and they are going add in to one of them slots, The doctor should call my translator within a couple of days to arrange a date for me to go and see him, and have pre-op checks.

So it looks like I would be having this operation by the end of February.

I will keep all of you posted on my progress, my 2nd Triple Fusion operation.

I am going to ask somebody to look after my website for me while I am in hospital, so please, continue using my facilities here, or email me for any help or support.

[b]Update 12 June 2006[/b]
Hi All,

I really should give an update on how I am doing.

I have had the operation on my foot now, They places some metal work in the legs, to fuse the ankle joint together. The movement is what the doctor thinks is causing the pain.

The good thing about being in Spain, is they do not use plaster, (as it is so hot) So I am in a bandage, which I can removed at night.

I have to wear a foot brace for a little while (3 months), but I am starting to walk again now. Which is a good thing. Slowly but surely.

This website has been updated now. I have checked for errors, and everything seems to be working my end. If you find any errors, please let me know.

Please keep your stories coming in, and now you can add your comments.

Best Regards
Jamie

Update

Updated 12 June 2006

Added on 01 Jan 2008

Comments

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Comment added by Jean Marlowe on the Sat 7 August 2010 a 09:20am

my 16 year old twin daughters were born with severe club feet,and had opeations since they were babies in temple street childrens hospital in dublin ireland,they still suffer a lot today with bad pain in their feet,they have been through a lot,job wise i dont know what the future holds because they cant stant for too long they are beautiful girls and very artistic,one of them needs another op soon which they will break 2 bones in her right foot hopefully it will give her a better chance of walking easier.i have a lot f sympathy for people born with club feet

Comment added by Tan on the Sun 1 August 2010 a 04:42pm

I have read many of your stories and understand what you have gone through. I was born with bilateral clubfeet in 1988. They were corrected through surgery and cast when I was about 1. Similarly to many of you, I had (and still have) stitch marks on the inner soles of my feet and grew-up with plenty of related issues. I doubt that I was put through proper rehab after my correction. My feet pointed about 40 degrees inward, and I could not squat down with my feet flat on the floor. I would trip and fall all the time and struggled to play soccer as a kid. However, unlike most people here, I was not 100% aware of my defect, and my parents never bothered to explain it to me. They would regularly criticize me for being clumsy or tripping and falling, or not playing enough soccer to "strengthen your calf muscles". By the time I was 8, I was so fed-up with my annoying inward-pointing feet, I would consciously point my feet outwards whenever possible. I can't recall for how long, but after what I believe was a few weeks, my feet actually started pointing straight forward naturally. I was problem-free for the next several years until about age 15. Any time I would jog or play basketball, I would get severe instep (top of the foot) pain. To keep a long story short, I engaged in weight training, including numerous calf exercises, as well as some plyometric training to enhance my performance. Amazingly enough, I believe this strengthening of my muscles and tendons was responsible for a complete elimination of the pain. I am 22 now and have not had serious, sports-related instep pain issues since (though I do occasionally get minor arch/midfoot pain). I am currently seeking training to lengthen my calf/Achilles-tendon complex to allow me real ankle flexibility. The lack of flexibility means that I cannot ever sprain my ankles, but at the expense of jumping, squatting, and swimming ability. The bottom line is that YOU can take control of your defect through research, hard work, and determination. Use the rubbernecked stares and criticism as fuel. Remember, we have had it harder than the others. Other people with well-publicized defects get coddled and recognized, and they receive special treatment from others. We DO NOT. Take this as a motivational building block. Please contact me if you want to discuss this issue.

Comment added by Drew on the Fri 16 April 2010 a 06:11am

Hi all I hope you don't mind me posting this comment, but after reading all of yours as part of some research I was doing, I wanted to say that it was really inspiring reading about you all overcoming adversity and rising to your personal challenges. Thank you for sharing. In future, I will try to complain less about life!

Comment added by Justin Franchi on the Tue 16 March 2010 a 03:12pm

i have club feet my left foot was corrected when i was born but my right foot wasnt. i saw a orthopedic surgeon and he performed a surgery to fuse my subtalor and put a screw throu my heel and now i cant bend my foot down. but this surgery still didnt correct the problem im 22 now and im expieriencing alot more pain now in my feet but now the pain is spreading to my hips and back. my hips are offset. idk what else i can try to help this. the surgeon also said that i probably wouldnt be able to work after the age of 30 but i fear that that day is comming sooner because everyday the pain gets worse and worse. just thought i would share my story with everyone else. i hope every1 else isn't expierienceing what i am .

Comment added by Justin Franchi on the Tue 16 March 2010 a 03:10pm

Comment added by Julie Diamond on the Wed 10 March 2010 a 04:53pm

Hi I am 50yrs old and had severe club feet.i had special boots as an infant that were progressively turned outwards on a daily basis.My achillies was shortened to bring the foot down.I also had my heel shifted and pinned.As a teen i was very knock kneed so they put pins in my knees to slow the growth.They left them in too long so i needed another op to take the pins out as i went bow legged!I have had to have a parcial knee replacement in the left knee and now the other knee has collapsed on one side so am having hip pain also in that side so i am up for a knee replacement on the right side and hopefully that will help my hip.Just a bit worried that i wont wreck the knee replacements due to the leg alignment as you can only have 2 done. I have been very lucky that i dont have pain in my feet but a little worried about the yrs to come.

Comment added by Amanda on the Mon 10 March 2008 a 02:25pm

For starters, I don't have clubbed feet.. But my son was. He spent the first 11 months of his live in casts. His first sergery at four months and second at nine months; which he also had a pin put throw his left foot for six months. His right foot is doing amazinf, but I am very worried about his left. He just turned four years old back in December and is about to have his third surgery. It was so much eaiser doing this when he was a baby.. He is now a very active child and is about to be put into a cast anywhere from six weeks to 12. I am very worried about him.. When did they begin trying to fix your feet (how old were you?)? I don't want my baby to go through all this pain that I read you talking about.. Any help or support that I might get is much needed.. I am about to send myself into a nervise brake down. Please, I would like to know more about your story and what I should expect and what my little boy is probably going through.

Comment added by Neptune on the Tue 18 September 2007 a 12:56pm

Keep up the great work. It very impressive. Enjoyed the visit!

Comment added by Tmiq3b1lym on the Sat 15 September 2007 a 02:32am

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Comment added by Jane on the Tue 17 July 2007 a 02:03pm

Nice site! My homepage | Please visit

Comment added by Liz Carson on the Sat 23 June 2007 a 07:14pm

your story is so similar to my son who is 19 and was born with two club feet and has a lot of ops as well he had an op in dec 06 where they took his ankle joint away and put in pins but unfortunatly this didnt work so he was back in on 21/06/07 and had it done again he has pain constantly and his foot swells all the time and cant walk to well

Comment added by Jordan Bowman on the Sun 10 June 2007 a 11:28pm

Hi i am going to be 20 on Tuesday and i was born with a left club foot and had one operation when i was 6 months to correct it. After that i had a somewhat normal life i could walk and run like just about anyone but then when i was in second grade i started to get overwieght and i am now to this day and so because of that and the pain from my left foot i gave up doing alot of physical things, but then when i was 18 i started working and at first it gave me alot of pain and trouble. I have tried all sorts of things that have helped to make it beriable (sorry i know my spelling is bad) I use those gell foot cushions i wear an ankle brace on my left foot, i take osteo bioflex to keep it flexiable and always wear some kind of hi top shoe or boot that closes the ankle and all this has made it ok sometimes no problems at all i do go through shoes quick beacause the left foot leans in and ruins the support out of the shoe so i probly change shoes about every 2 months but i am doing alright i am trying to get into wrestling which is a very demanding sport but ive lost some wieght since going to work and im just dealing with the pain one day at a time so if anybody wants someone to talk to or has any suggestions on dealing with the pain please drop me a line at my email jb_1987@comcast.net P.S. to parents of children with club whatever you do do your best to keep them active and not overwieght cuz the extra wieght just makes it so much worse

Comment added by Dustin Moody on the Thu 31 May 2007 a 09:16am

Hi my name is dustin moody i also was born with club feet both of my feet seem to hurt alot i have gone through many jobs in my life due to my feet hurting so bad. some times i can walk okay and other times i can not walk at all. for instance i started a job 2 days ago and today as i write this leeter i can not walk it feels like there are knives going up my feet. i had many surgeies as a child but now they are wanting to do another surgerie and that makes me nervous considering that i am now 22 years old married and three kids.

Comment added by SHERRI on the Mon 21 May 2007 a 09:39am

My name is sherri and I have a daughter who was born with club feet. She is only 10 weeks now and she has been wearing casts on both feet since she was 2 weeks old. Her orthopedic is telling me that she will need to have a heal cord lenghening operation on both feet right after she is 10 weeks. I am still not convinced in my mind that my baby needs this operation. And if she does I cant understand why she needs to have it done when she is only 10 weeks old. I have asked her doctor this and her doctor tells me that the operation should be done before the bones start to harden --otherwise the operation will be more serious. Is there any parents out who is going thru the same thing. Is your baby 10 weeks and is the doctor insisting on the heel cord release operation even though you child is only 10 weeks. I want to get these pareants thoughts. Thank you Sherri

Comment added by Chuck on the Fri 4 May 2007 a 12:07pm

I was born in 1958 with severely clubbed feet. I had 7 operations by the time I was 5 years old. Dr. Teal, who was a club foot sufferer and pioneer in the corrective surgeries of the early 1960's performed an experimental surgery on one of my feet. Although it made my right foot look more "normal" it has made me live my life like a car out of alignment. I blow through a left shoe every 60 days, regardless of quality, and have for over 45 years. I have unbearable pain most days, but having the two different feet makes for differing pain. For years I took aspirin and just handled the pain, but in the past few years I have had to increase to Vicodin at night. I also take Diazapam for the muscle spasms. It helps, but as all of you know, it NEVER stops the pain. Please don't make your children any more self-conscious than they already are. It took me 30 years before I would wear shorts and low socks because I wanted to hide the scars. I would tell people that I had a sprained ankle if they asked why I limp. Do not let your kids go through life like that. It is tough enough to overcome the physical part of club feet, don't add a mental side because YOU are afraid of how telling your child the truth might hurt. Trust me, they were THERE during those surgeries. Tell them the truth about why they had them.

Comment added by Christy on the Mon 30 April 2007 a 11:39am

I am 34 and have club feet and I have had many many surgerys.Here in SC where I live,I don't know anybody who has club feet. Everyday is a battle for me.I have two kids,Thank God they don't have it.But, It would be nice to know others like myself to talk to.I feel like nobody understands how I feel.I use to hide my feet because I didn't want others to see just how much I had been through.I give up on pain management.It's just something to get us on pills and screw up our life even more.And I live life like everyday is a gift from god.But the pain is real,and I hurt all the time but we can't sit back and let life pass us by.If there is somebody here who wants a friend to talk to ,then that's me.I would enjoy to talk to you.Like I said,I have never saw anybody here like us.Our battle gos on but for me I'll hold my head up high and live a happy life. God Bless.. Christy

Comment added by Cdd on the Wed 25 April 2007 a 11:43pm

My partner was born with club feet. He is now 57 years old and is suffering with daily pain which seems to worsen each year. He like others had numerous surgeries in childhood, played sports and never let this interfere with life. My question is if anyone has suggestions to help with the pain. Has anyone tried any form of formal pain management? He does not want any other surgery at this point in his life, just suggestions on how to cope. thanks

Comment added by DAVID CHARLES GREEN on the Sun 15 April 2007 a 08:07am

BORN 1965 BOTH FEET WERE CLUB FOOTED HAD OPERATION WAS 6 WEEKS OLD,DR DENOM AT OLD PORTSMOUTH GENERAL HOSPITAL DONE OP,IT WAS ACTUALLY FILMED [DOCUMENTED] AND DR DENOM WENT ALL AROUND AMERICA LECTURING ON THE OPERATION I HAD, AS I WAS THE GUINEA PIG FOR THE OPERATION WHICH NOWADAYS HAS PROGRESSED IMENSLEY AND YES I DO HAVE PAIN CONTINUALY AND WEIRD ANKLES AND CALF MUSCLES, ONE ORTHAPEDIC SURGEON EVEN SHOOK MY HAND A FEW YEARS AGO WHEN I MET HIM AS I WAS REFERRED TO HIM ABOUT MY ANKLES

Comment added by Adam B on the Mon 12 March 2007 a 04:35am

43 today and born with extremely clubbed both feet. I have played nearly every sport I wanted and never took no for an answer. Can remember taping my feet to help with my leverage. Most folks only notice the lack of development in the lower calf (soleious). Yes, I have had pain and over a dozen operations but heck haven't missed out on much. Don't hide, live life.

Comment added by Laura Roberson on the Fri 9 March 2007 a 10:18pm

I was born with clubed feet and have had a good life. I have very lttle problems with my feet, except finding shoes to fit. I have never been intimidated about doing things. I am a mother of four and am thankful their feet were okey. I had correction done at six weeks but didn't walk until I was four. I had surgury done at eight years old and my feet were straighten and never gave me any pain walking or standing. Smile and the world smiles with you, cry and you cry alone. laura

Comment added by Kim on the Fri 26 January 2007 a 06:00am

Hi,Im in N.Z.40 yrs with right club foot and one shoe size diff. I was operated on at 6 weeks old and have quite diff calf sizes, This is just a message to parents of kids with club foot,particularly the girls whom may be very self conscious in their teenage years as I was. This condition will make your children mentally stronger if they can get to try as many different sports/activites as possible when young,I found skiing awesome, still arent that great at it but balance seems to be something club foot enhances,also rollerskating tho not so much now(am too old my kids tell me)I have two great daughters both with lovely long straight feet which was the first thing I looked at when they were born,my partner went out with me for three months before he noticed my foot and that was because i wore jandals and shorts. To the girls(and boys)- Dont worry about what others might think as I know you do,as long as you are out there giving it a go people will respect and admire you for that,if they cant see all your qualities and who you are then that is their loss so just smile back at them,they will have challenges of their own that may not be as visible.

Comment added by Stephanie on the Wed 17 January 2007 a 04:01pm

Hi: Our daughter who will be 5 in May of this year was born with club feet and had surgery at 6 months of age. Please email me directly if you had club feet or have children with club feet. Thx. Stephanie

Comment added by Stephanie on the Wed 17 January 2007 a 04:00pm

Comment added by Doreen on the Mon 18 December 2006 a 09:13pm

My daughter is 14 yrs. old. She was born with a severe left club foot. She was operated on twice. She hasn't let it stop her doing anything. She is the starting point guard on the Freshman basketball team for a 6A school. She sees a chirpractor twice a month to help with the leg length(limp). Whenever she tells someone about her foot they are all stunned. It's so easy to see the difference in her calf size, I'm amazed that noone even notices. Anyway, I hope that those kids that are afraid will take courage from her. Just get out there and have fun!

Comment added by Joycelyn on the Fri 15 December 2006 a 02:41pm

I am mystified at all your comment and experiences,also very nervous. Fear trys to engulf me. My son now 8,has been through 2 corrective surgery one for each foot and does not talk to me about pains. I started talking to him earlier this year about the scars on and around his foot (tentatively).I just dont know how to handle (if and when he might need) surgery.I am even afraid to talk about him with the public. He faced me once saying,I can not get on my toes, twist my feet or move my foot around like others. Why mommy?. I am ashamed to say that I responded evasively, afraid that I might explain and destroy any part of him. Emotionly I am at my wits end. HOWEVER,WE HAVE MARCHED CONFINDENTLY TOWARDS HIGHER LEARNING. AT THIS POINT HE IS WRITING A BOOK AND CONTINUOUSLY EXPRESSES HIS INTENTION TO BE A WRITER. Now we realized that,THAT might be a job fitting to him especially if he can not stand too long on his feet

Comment added by LISA on the Wed 13 December 2006 a 04:41pm

i have a 3 year old girl with a left club foot.She has had surgery one time at nine months old and contines to wear a full leg brace.I would like to understand more about other people who have been through this kind of surgery and I often wonder if this energetic little girl will be able to live a normal life and do whatever she wants.April is a strong child that lets nothing hold her back.I let her do whatever she feels she is capable of doing.I love her and just always want the best for her in the future.

Comment added by Tiffany on the Thu 7 December 2006 a 04:26pm

My name is Tiffany. I am 21 and have had 9 surgeries for club feet. Seven of the surgeries were done before i was five. Most of my life I tried to act normal, but my limp always gave me away. I then had two more surgeries to shorten my tendons so that they could actually be used. That helped a little for the pain. I'm now working as a pharmacy tech and I'm on my feet all day. The pain is terrable. I dred each step, but standing still is just as hard. I try to be strong but what will i do in ten year? Will I be able to walk? Oh and Kristin if your reading this tell Brittani hiding isn't the answer. I know it's hard to feel comfortable in your own skin when you feel like you are so differant from everyone around you. It's like everyone is starring, but mostly its in our head. Beside's if someone is going to judge you because your feet look a little different then you don't need them. Love is blind and unconditional. Thanks ~Tiffany

Comment added by Robert McLaughlan on the Tue 5 December 2006 a 04:52am

I don�t know if I can help adding my comment but it worth the try I have just had a triple fusion and it has not been easy as I was not born with a club foot but I had an accident when I was 7 years old an the doctor did not due the operation write but I had no idea that he was to blame as the years went bye I started to have a lot of pain in my foot I thought that�s the way it must be when to a doctor and he told me there was not much he can do for me so for 30years I have had pain in my back and foot and unable to walk problem until I moved to Sweden when a doctor looked at my foot and he recommended a doctor to me we met and he said it would be possible to do a triple fusion but it may not turn out good well in April 2006 I had it and I have just recently had two pins out of the three took out he has explained to me that it has been the most difficult operation he has done, if is 1% better it has been worth it well time will only tell but I thing he has been a excellent doctor and he has an excellent reputation.I hope all is well with you Jamie.Thanks,Robert

Comment added by Julie Pellow on the Mon 13 November 2006 a 08:12pm

i to was born with club feet had loads of opperations when little in the last 2 years ive had 2 opperations on the same foot been in plaster 4 ever an now have boot on which was made 4 me last opp was march this yr. an 2day the 14 0f november 2006 my foot is killing me have 2 go bk hospital tom 2 have plaster bk on until nx week until i c my specalist god knows what hes going 2 say i just cant put any weight on it just cant walk reasting it at mo withy loads of tablets by the way ive had a triple fusion not good hey keep me infomed amy body love 2 hear from people like me im 43 an chessed off at mo look forwood 2 hearing from someone thanks julie

Comment added by Jane Graves on the Sun 27 August 2006 a 12:55pm

My daughter Olivia, was also born with both of her feet clubbed. She will soon be getting a operation done on her left foot . The Surgeon is going to cut a wedge out of her leg bone. She has already had three one on it already. Hopefuuly this will do more correction. Nothing stop's her doing from anything that she wants to do. I encourage her to do whatever she feels that she can do. Best of Luck Thanks, Janie

Comment added by Caroline on the Sun 20 August 2006 a 11:08am

Hi,I am a 46 year old lady,married with 2 of a family.I have a right clubbed foot which has given me problems over the years but after four operations and several broken bones I am still working as a care assistant which I have done for the past 26 years.

Comment added by Jamie (Site Admin) on the Mon 7 August 2006 a 11:45am

Kristen: Clubfeet can stop some people from being on there feet too long, but thats about it. I was like your step-daughter. I didn't want to try certain things, but my brother inlaw kinda forced me into it. Which i am grateful for. One day he took out go-karting. He also took me paint balling, and then I took him quad biking (well he paid for it, but it was my idea) Once you manage to do one thing, then think, they wasn't bad, You will try almost anything.

Comment added by Kristen Bonaventure on the Sun 6 August 2006 a 12:34pm

Hi!!! Jamie, my name is Kristen i have a step-daughter named brittani, she is 14, and she was also born with club foot. She is scared to do most anything. I tell her that she is missing out on a lot of fun with her friends. I feel as if she uses it as an excuses. I want her to know that she can do anything and be anything that she wants. That her feet should not stop from having fun and having a life. In what way can I motivate her.

Comment added by Jamie (Site Admin) on the Sun 25 June 2006 a 09:21am

Misty: Your feet should not be causing much pain. The last operation I had seems to be the first operation where the Doctor wants to STOP the pain. I asked him after the operation, will I walk with a limp, he said, maybe, the operation was to stop the pain, not correct the shape. If you are in that much pain, I suggest trying another doctor, for a second opinion. Every doctor seems to like doing different operations.

Comment added by Misty on the Sat 24 June 2006 a 03:58pm

I, just like you was born with club feet. I have had @15 surgeries since birth by the same surgeon who preformed th efirst at 9 mo. old. In 2003 was my last surgery. The doctor called it a triple arthodesis, where he fused all my joint in my right foot ( the foot that causes me the most pain). Three years later it still bothers me everyday, although I'm still able to work and take care of my family. I'm 26 now, and i'm pondering the way my feet will feel in 20 years. My doctor says it shouldn't be bothering me, and says the only other thing he can do is send me to a pain management clinic. So your story showed me that it's always a battle for some. Thanks, Misty

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