Hi, I am 22 years old and was born with bilateral clubfeet. They were really bad. Completely turned around, and so I have had many, many surgeries to correct it. I went to Shriners when I was a kid and they did a fantastic job, but I just had another surgery now as an adult through a recommended local surgeon. And I am less than thrilled with the result. It is straighter now I get that, but my mobility is WAY less, I have more pain and stiffness, and my arthritis worsens everyday. I am not happy, and all they tell me is there is nothing left to do except more surgeries to make it even straighter, but is making it straighter really the best decision? Is it really the best option? I used to be able to dance before, was I risking breaker bones because of its shape, yes, but now I can't dance at all. But it looks better right? I was told the functionality would improve and its not, its worse, and now they can't do anything.
I am considering amputation. My foot is basically deteriorating and it is NEVER going to get better or stronger some day no matter how much physical therapy I do. I have been told this is extreme but in my opinion it doesn't seem any crazier than all the many surgeries I have already been through. There are a lot of really great prosthetic devices that I think could help me with my balance, my scoliosis that has developed, and my knees since they pop out of socket all the time now because I can't walk well.
It is only going to get worse with age and my healing time goes down with age. They tell me I probably only have 10 good years left out of both my feet before the will really start to fall apart. Do I really want or need those 10 years just to be stuck at the same point?
Aesthetically pleasing or functional and healthy? I am not vain, so that helps my decision. But I would like to hear from other people in similar situations, have you ever considered this? or actually done it?
Thank you.
extreme or worth a thought?
(4 posts) (4 voices)-
Posted 10 months ago #
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hello,
i have just read through below and much i just say hoe brave i think you are. Your feet sound alot worse than mine but may i add amputation i would of never thought it would of gone that far! As you say your not sure whats right for yourself and i totally understand where you are coming from. But please never give up hope and what you want to do in life! Do you think that amputation on your foot would be the best option? are you able to walk? are there any shoes that you are able to wear? Since we are at since a close age (im 21) its nice to know someone my age is going through the same.
Take care
LauraPosted 10 months ago # -
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Book of Ra | Book of RaPosted 8 months ago # -
I am 37 yrs oldhad same surgeries at Shriners hospital in chicago,i had i another surgery 2yrs ago when danceing, walking,standing,or any activity got worse.And was told exactly what u were there is only surgery to look forward to in the future.But i have never been right since my surgeries at Shriners. But i dont think amputation is the way to go i think that is ur desion and u really need to think it thru.
Posted 6 months ago #
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